Cathi could never imagine that a simple typo would play a significant role in her husband’s transplant journey. In 2019, David received life-changing news that he was in kidney failure. Shaken by this diagnosis, his wife, Cathi, went to social media to gather advice on finding a donor. She typed in her county and stumbled […]
Power Player – Mike
Mike had never thought about organ donation before – and didn’t even realize there is a need for organs. However, that all changed when he attended a family event and learned that his cousin, Brenda, needed a kidney transplant. Since Brenda was a distant cousin, Mike introduced himself, and after they began talking, he immediately […]
Power Player – Susan
Three years ago, Susan wanted to become more physically fit and learn about overall nutrition, health, and wellness, so she began searching for a personal trainer to help her achieve those goals. While exercising with her trainer, Matt, he mentioned that he would be visiting his hometown for a while to see his sister, Shannon, […]
Power Player – Linda
My name is Linda Walker, and I am a kidney donor and recipient. I’m married to Charles Walker and we have two children and one grandson. In 1998, my brother needed a kidney transplant. Out of my eight siblings, I was a perfect match. I went through several weeks of testing. On March 31, 1998, I donated […]
Power Player – Kingston
In April of 2019, Lisa Macfarland welcomed her 2nd son, Kingston, into the world, who appeared to be a happy, healthy baby. Yet, 2 weeks after Lisa gave birth, Kingston was no heavier than his original birth weight. Doctors insisted to Lisa that she was simply not feeding her son enough, and suggested supplementing with […]
Power Players – Mike and Joy
Last October, Joy decided she wanted to be a living kidney donor. She didn’t have a recipient in mind, but she filled out a questionnaire and was told she could proceed with medical testing. “I just woke up one day and decided I wanted to be a donor,” Joy said. A couple of […]
Power Player – Robert
Written by Robert C. Five years ago, Robert Collier lay in a hospital bed after years of trying to fight off a disease that was “scarring my lungs to where they were hard as a rock.” Collier was placed on a lung transplant list, but it could take months before he may receive new lungs. […]
Power Player – Shawn
Shawn recently celebrated his first kidney transplant anniversary, thanks to his friend and living donor, John. Over 15 years ago, Shawn met John at a church retreat in Miami. The two became fast friends, and Shawn shared that he had Polycystic Kidney Disease (PKD). When Shawn explained how PKD leads to kidney failure, John immediately […]
Power Player – Roy
Roy is a store manager at a regional furniture retailer called Raymour & Flanigan. In 2019, Roy’s store gained a new associate, Randy. Randy had requested a transfer to a store that would make his commute easier, as he is the caregiver to his 21-year-old son with brain cancer. Two weeks after Randy started, he […]
Power Player – Tyler
Several years ago, Tyler overheard a conversation about living kidney donation. This topic always stuck with him, although it would take several years for the idea to come to fruition. Tyler was in a work accident in 2009, which left Tyler with an amputated foot. “I learned to live with missing parts, so I knew […]
Power Player – Terri
Terri was born with Tyrosinemia, a rare metabolic disease, where the body doesn’t have what it needs to break down tyrosine. She was in and out of the hospital frequently as a child; something as simple as a cold would put her in the hospital. Terri’s care began in Georgia, but Terri and her family […]
Power Player – Tammy
It was the early 2000s, Tammy was in her 40s, and she was becoming increasingly ill. This went on for about a year. Meanwhile, Tammy was missing work and losing a significant amount of weight. Her doctor advised her to see an allergist. When she went to see the allergist, she was told that she […]
Power Player – Rylee
Our daughter Rylee was a gift from the beginning. Even before she was born, we knew she was strong, mainly because she was able to kick and punch me more than either of her brothers. When Rylee was first born, she was perfect. Her brothers, Cody (6) and Wade (4) were so excited to meet […]
Power Player – Damian
Damian had never thought about living organ donation before. That was until one of his best friends needed a liver transplant. A few friends from high school volunteered to be her donor but ultimately fell through. A family member of his friend asked Damian to post on social media about her need for a liver […]
Power Player – Ken
Ken was diagnosed with Polycystic Kidney Disease at the age of 24. This diagnosis would eventually lead him to a kidney transplant. Ken remembers his diagnosis clear as day. It started as a typical day, but after dinner, Ken felt pains in his stomach area and dead pains in his back. These pains had been […]
Power Player – Liz
Liz was diagnosed with cystic fibrosis at just four months old. By her sophomore year of college, her health began to decline, and she had to move back home with her parents. She knew that a lung transplant was in her future. By February 2018, her illness became much more severe. Her doctors decided that […]
Power Player – Lara
Written by Lara G Have faith in God. All that’s required is that you really believe and do not doubt in your heart. You can pray for anything, and if you believe, you will have it. Mark 11:22-24. I’ve lived by this since March 2017 and have often referred to it as my lifeline because […]
Power Player – Randene
Written by Randene R. Meet Gary, 72 years young with a now fully functioning kidney he received from his daughter, Randene, at the age of 33. At the early age of 18 during a routine physical, Gary’s family doctor discovered excessive albumin in his urine. Concerned with kidney failure, over the next 7 or 8 […]
Power Player – Caleigh
Caleigh was diagnosed at birth with Cystic Fibrosis. Despite her diagnosis, Caleigh lived a normal childhood and participated in sports and social activities. At the age of 19, Caleigh moved to San Francisco to attend culinary school. Unfortunately, during this time, she found herself in end-stage lung disease. At just 23 years old, she was […]
Power Player – Rhonda
Two years ago, Rhonda’s father went into kidney failure because of his diabetes. At the time, he was 74 years old and just starting home dialysis. After a year of dialysis, Rhonda told her father that he should attempt to get a kidney transplant. She offered to be his living donor, but he declined her […]
Power Player – Vernell
In 2015, Vernell received news that he needed a heart transplant. His doctor told him to pack his bags – he required hospitalization while he waited for a new heart. He suffered from congestive heart failure and spent six months in the hospital waiting for an organ donor. The wait was difficult for Vernell and […]
Power Player – Matt
Matt has been dealing with kidney disease for his entire life, all 42 years of it. It has not knocked him down but made him stronger. Matt was born with Eagle-Barrett’s Syndrome. When he was born, he had about 10% function of his kidneys. The first ten years of his life, he considered it “normal.” […]
Power Player – Vicky
Vicky’s journey began 40 years ago when she was diagnosed with chronic kidney disease at 26 years old. At 26, she was told her kidneys were functioning at 75%. In her 40s, she started seeing a nephrologist, who monitored her kidney disease. She was told she would need a kidney transplant. Although transplantation was not […]
Power Player – Alin
On December 21, 2018, 30-year-old Alin’s life changed forever. After having episodes of dyspnea for several days, she decided to go to the emergency room. She became critically ill during her first night in the hospital, and by the third day, she was told that she would likely need advanced heart failure therapy since her […]
Power Player – Kevin
After some health issues, Kevin found out he needed a heart transplant. In July 2017, he was added to the transplant waiting list. Kevin said waiting was the hardest part of his journey. “I prayed every day while I was on the waiting list,” Kevin said. “My condition got worse during the wait, so I […]
Power Player – Tara
On December 12, 2017, Tara found out that her dad, Todd, was in end-stage renal failure and would need a kidney transplant. Tara immediately knew that she wanted to become his living donor. Todd hesitated to allow Tara to donate her kidney. However, she finally convinced him that it was safe for her to donate […]
Power Player – Reid
Written by Reid Barker Power2Save previously published a story written by Reid’s wife, Lisa. In February of 2014, in the hallway of the Baylor Dallas hospital ICU, I was told my wife would need a full liver transplant from a deceased donor to have any chance at survival. Her body was in liver failure which […]
Power Player – Summer
Seven days after giving birth to her son, Kaleb, Summer passed out and was admitted to the emergency room. She was diagnosed with post-partum cardiomyopathy and was told she would eventually need a heart transplant. She was just 19 years old. The news was very terrifying, especially for a brand-new mom. A year and a […]
Power Player – Ixel
Ixel was just eight years old when she found out she needed a heart transplant. Her story began when her mom brought her to Urgent Care, for what she thought was a cold. She was sent to the hospital by ambulance. At the hospital, it was clear there was something wrong with her heart, so […]
Power Player – Patrick
In April 2013, during a visit with my endocrinologist, I found out that I only had 35% kidney function. She referred me to a nephrologist. My nephrologist informed me of certain foods I needed to avoid so that I could prolong going on dialysis as long as possible. While I had to wait this thing […]
Power Player – Sarah
My name is Sarah Bradley, and I am from a small town called Roswell, NM. I’m a proud momma of two boys. I am also a heart transplant recipient. A lot of times, when you hear the words heart failure, you think of the elderly. As a healthy 25-year-old, never did I expect to hear […]
Power Player – Michele
Michele always assumed that the only way to be an organ donor was to designate it on your driver’s license. However, after a string of unexpected events, she became a living donor to a woman she had never met. Michele lives in Florida, but her kidney now lives in California. The origin of her story […]
Power Player – Christy
In 2005, Christy was diagnosed with heart failure. By 2014, she was told she would eventually need a heart transplant. The news that a heart transplant would be in her future was not easy to hear, but with a history a heart problems, Christy was not terribly surprised. She tried to stay positive when she […]
Power Player – Ray
Ray’s doctor often refers to him as a “walking miracle.” He beat all odds, and if he were a textbook case, he would not be around today to tell his story. It all started in December 2016, when Ray began retaining fluid in his abdomen. It became difficult to sleep, so Ray consulted his primary […]
Power Player – Valerie
I went to my GP back in 2000 because I had been suffering from diarrhea for a rather a long time. I was referred to a consultant, Dr. Ellis at the Horton Hospital, Banbury. When he looked at my blood test results, he found that I had the anti-mitochondrial antibody which can sometimes lead to […]
Power Player – Brock
In April 2017, when Brock was just turning 11 years old, he was diagnosed with stage 4 hepatoblastoma, a tumor that starts in the liver. By July 2017, he needed a liver transplant and was added to the waiting list. All of this came as a shock to Brock and his family. Brock appeared to be completely […]
Power Player – Dave
Written by: Dave R. My transplant journey began at birth – I just didn’t know it until I was in my 50s. I was born in 1956 with a hole in my heart, and of course, it was undiagnosed because the technology was just not available in the fabulous 50s. The amazing thing is I […]
Power Player – Steve
In 1992, Steve was diagnosed with Primary Sclerosing Cholangitis, a form of liver disease. Fortunately, the disease progressed slowly and Steve’s doctors were able to keep it under control for many years. Nearly ten years later, it had been so long since Steve was first diagnosed that he had forgotten the potential outcome – a […]
Power Player – Anne Marie
I was born in Ottawa, Canada with a congenital heart defect. I had 3 heart surgeries as a child, the first one being the day after I was born. Doctors had warned my parents that these surgeries were palliative: problems would eventually start to arise because my heart would start to fail. Although I couldn’t […]
Power Player – Sandra
Sandra was on a family vacation in Mexico, when something happened that would change her life. While playing with her kids in a waterfall, she slipped and scraped her ankles. She had an open wound and entered tainted water. Months later, she began to feel tired. Her drowsiness turned to exhaustion, and Sandra soon went […]
Power Player – Denise
Denise recently celebrated the 20-year anniversary of her transplanted liver. Her donor was 75-year-old, Geraldine Hodges. Her liver is now over 95 years old – and still going strong. Denise found out she would likely need a liver transplant when she was around 18 years old. She was diagnosed with autoimmune liver disease, which ultimately […]
Power Player – Lauren
I am a 28-year-old female who has lived with Cystic Fibrosis her whole life. If you don’t know, Cystic Fibrosis causes thick mucus build-ups in lungs, which become nearly impossible for medicine to cure, thus resulting in a lung transplant. For the last six years, my doctor has causally mentioned lung transplant at various appointments. […]
Power Player – Carol
To say that I was an unlikely kidney donor is an understatement. If my high school yearbook had had a “Least Likely to Be a Living Kidney Donor” category, that would have been me. I’ve always been a wimp: I faint at flu shots, IVs, blood tests. And yet, in June 2006, I donated a […]
Power Player – Jill
Written by: Jill Stephenson My greatest gain I count as a loss. As the sister AND mother of organ donors, I can make this statement twice. When I was barely fifteen years old, my eleven-year-old brother J.T. was hit by a car and declared brain dead ten days later. As a family, we were approached […]
Power Player – Ken
Ken was just ten years old when he was diagnosed with kidney disease. His doctors tried to treat the condition for years, but by the time Ken was in college, it was clear he would need a kidney transplant. During his second year of medical school, Ken’s father volunteered to be a live donor and […]
Power Player – Rick
Rick and his wife, Jackie, have always been there for each other. They have been married 36 years and have always taken care of one another. In 2015, Rick gave his wife a Valentine’s Day Gift that will be difficult to top – he became her living kidney donor and saved her life. It all […]
Transplantation: The Science Fiction That Became Mainstream Medicine
Written by: Reg Green To most people — to almost all people — the idea of having someone else’s heart or liver, kidney, lungs or pancreas inside them is too outlandish to think about. But, in fact, all around us there are ordinary men, women, and children who one day have been, or will be, told […]
April is National Donate Life Month
April is Donate Life Month. This month-long celebration of life was first established by Donate Life America in 2003. Below is some essential information to help you celebrate. National Pediatric Transplant Week Brand new this year is the National Pediatric Transplant Week. Celebrated April 23-27, 2018, National Pediatric Transplant Week was created in collaboration with […]
Power Player – Holly
I was the youngest by three minutes. So, I suppose being a twin help me to fight, to give me the will to live from day one. The doctors knew something was wrong. I don’t think we ever did get a satisfying answer as to why I was sick. I ended up being the youngest […]
Power Player – Brooke
March 28th, 2018, marks our one-year Kidneyversary. Last year I was a 38-year-old wife and mother of 2 boys who were 7 and 9, and I decided to be a kidney donor for my brother-in-law. This would be his second kidney transplant. My brother in law, Rob, was diagnosed almost 15 years ago with FSGS. This […]
Power Player – Cynthia
Cynthia Infante is a two-time kidney transplant recipient. She was born in 1972 in Arizona and has lived there ever since. She was first diagnosed with kidney disease at the age of 15 and at the age of 19 she was placed on hemodialysis. While on dialysis, she remembers sitting for three to four hours […]
Law & Order Episode on Organ Donation
On March 14, 2018, an episode of Law & Order SVU aired which featured a story about a child’s organs being recovered without the consent of her parents. While this episode was not based on a true story, the message it portrays is damaging to the public’s trust around organ transplantation and donation. In the […]
Power Player – Anna
I never had any problems growing up and was “normal” for all I knew. I was 21 years old and in my 2nd week of nursing school when I became short of breath for over 3 days. Finally, I went to the ER because of it. That day, I went from being “normal” to finding […]
Power Player – Brigette
Written by: Brigette McKern At the age of four, I was diagnosed with Cystic Fibrosis – a disease that affected my lungs and digestive systems. Even with receiving quality care, my parents were told I would most likely not survive past school age. My parents kept me compliant with treatments, medications, and appointments, and as a […]
Power Player – Matt
My name is Matt Kishbaugh. I will be 35 on January 28, 2018. I live in Pennsylvania. My family and I know what it’s like to deal with kidney disease. I was 13 when I was diagnosed with polycystic kidney disease. Polycystic kidney disease is where a cluster of cysts form inside your kidney. The […]
Power Player – Rachel
Written by: Rachel Adams I donated altruistically to a woman in Pennsylvania. I think I’ll always remember the moment they told me her creatinine levels had gone down to normal. The sun was shining outside my hospital window and my mom and best friend were in the room. I didn’t know how many transplants were […]
February 14th is National Donor Day – Are You An Organ Donor?
For some, February 14th is filled with flowers, balloons, and chocolate hearts. But for those who advocate for organ donation, February 14th is a much bigger day – it’s National Donor Day. National Donor Day was established by the U.S. Department of Health and Human Services, the Saturn Corporation and its United Auto Workers in 1998. […]
Power Player – Paul
Paul is avid about working out and staying healthy. He never misses an opportunity to go to the gym and improve himself. He is also the recipient of two double lung transplants. When Paul was born, he was diagnosed with Cystic Fibrosis. Despite his illness, he played sports and remained active growing up. He believes […]
Power Player – Jordan
Jordan received a heart transplant as a child. He has been living life to the fullest – with a goal to be the first transplant recipient to visit every country in the world. Written by: Jordan D Marcia Follow him on Instagram and Facebook I was born with a rare, congenital heart defect known as transposition […]
Power Player – Tony
Written by: Tony Alfredo Leon Luna I am from Venezuela. I was diagnosed with myocardiopathy when I was 5 years old. I had my first pacemaker in 2005 and received another one 2011. After the second pacemaker, my heart was growing more and needed more stimulation. Since that the generator ran out faster, I received […]
Power Player – April
After a minor surgery in 2010, April discovered that she had chronic kidney disease. She then found out that she would need a kidney transplant. Unlike many patients with kidney disease, April never went on dialysis. She admits that she was too stubborn to start. Instead, she attempted to line up a living donor, although […]
Power Player – Edith
Edith was living a happy, healthy life when she suddenly became ill and was rushed to the emergency room. She discovered that that one of her lungs had collapsed and she was diagnosed with a lung condition called Lymphangioleiomyomatosis (LAM). She had been living with this condition for several years but was completely unaware. Unfortunately, […]
Power Player – Brandi
In 2014, I was living in Austin, Texas. I loved to exercise and lift weights. I enjoyed watching and playing sports. One day I notice my throat was sore so I went to the doctor. I was diagnosed with strep throat and prescribed antibiotics. After I finished my antibiotics, I noticed it was difficult to […]
Power Player – Miguel
Miguel was living a full life before his heart transplant. He had graduated dental school, started his own practice, and gotten married. In 2012, he began to feel sick. His face started to feel numb, so he went to see his doctor for tests. However, nothing was found in these tests, and he went back […]
Power Player – Stephen
Stephen was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD) that affects both the kidneys and liver. The disease was discovered during his mother’s 27th week of pregnancy during a routine ultrasound. Doctors gave Stephen a less than 1% chance of living more than a few hours after he […]
Power Player – Riley
By: Riley Tucker My name is Riley Tucker and I am sixteen years old. When I was seven years old I had been diagnosed with strep throat for nine consecutive months. By this time the doctors were starting to think there had to be some underlying cause. My family was recommended to go to Arkansas Children’s […]
Teen Panel – Transplant Patient Summit
We created a “teen panel” at the 2017 Transplant Patient Summit. Find out what it is like to be a teenager and manage an organ transplant. These teens discuss medication routines, friendships, and challenges.
Power Player – Amanda
By: Amanda Washek My name is Amanda and I am alive because of organ donation. At age 23, I was diagnosed with a rare liver disease called Primary Sclerosing Cholangitis, a disease that causes scarring and blockage of the liver’s bile ducts. I went from a seemingly healthy, newlywed, young woman to needing a liver transplant […]
Power Player – Jen
By: Jen White Hi – I’m Jen – @mytransplantlife on Instagram. My Instagram page is educational in nature, as I’m a Registered Nurse with a graduate degree, having worked as a nurse educator, combining my health knowledge with my own kidney disease experience. I was diagnosed with Chronic Kidney Disease in my early 20s, as […]
Power Player – Tawny
By Tawny Blum As a kid, I was very active – shocking I know! I played basketball and softball all the time, that was until the summer before my senior year of high school (1996). I started having GI issues but at that age, who wants to talk about having diarrhea! Eventually, I was diagnosed […]
Power Player – Alice
By Alice Vogt I am South African and was born with Cystic Fibrosis, a genetic disease affecting the lungs and digestive system. I was diagnosed at age two, and my parents were told that there is about a 20% chance of me reaching the age of 20. However, I had a fairly normal childhood, apart […]
Power Player – Lisa Barker
After living a healthy and happy life, Lisa suddenly discovered she had a condition that only one in a million people develop. Soon after, she was put on the waiting list for an immediate liver transplant. Now, she and her husband are advocates for organ donation and transplant research. By Lisa Barker 2014-the start to […]
Power Player – Melanie
Melanie is just six months old, but she has been through a lot since she was born. When she was two months old, her parents were told that their little girl had been diagnosed with biliary cirrhosis which was causing liver cirrhosis. Unfortunately, the first surgery attempt to help Melanie was unsuccessful and caused her […]
Power Player – Christine
On October 24th, 1998, at Cedars-Sinai Medical Center, Christine Galan became the first heart and liver transplant recipient in the Western United States. It was a new procedure, but Christine never doubted that it was for the best. Christine was born in Jamaica and moved to San Diego as a child. When she was a […]
Power Player – Mary
By the time Mary was 12 years old, she had already received her second kidney transplant. After being on peritoneal dialysis for two years at 3-years-old, Mary’s kidneys completely failed by the age of 5. At 5 years old, Mary received her first kidney transplant. Both of Mary’s transplants were from deceased donors, as none […]
Power Player – Rachel
After watching a Katie Couric news segment in 2010, Rachel Bennett Steury made a decision that would change the life of someone she never met. The program was on kidney chains, kidney donation, and organ donation. Rachel never knew that kidney donation was possible while still alive. “I felt like Katie Couric was talking directly […]
Power Player – Glenda
When 15-year-old Glenda Daggert was diagnosed with Type I diabetes in the early 1960s, “you hid diabetes.” In spite of her illness, Glenda went on to earn degrees in physical education and instructional technology, then teach for several years. She married Ira Copperman, moved to New York, and joined IBM. After 30 years with the […]
Power Player – Cheryl
A PowerPlayer is anyone who supports the life-saving cause of organ donation and transplantation, from the patients who receive transplants to the donors and their families who make those transplants possible, to the medical professionals who arrange and perform the life-saving miracle of transplantation. They serve to remind us that we all have the Power2Save. […]
Power Player: Lou Ann
There are a number of online pleas for living organ donations for those in need of a kidney transplant. It is a difficult ask for those in need, and it is a significant sacrifice for those who choose to answer. Our latest Power Player, Lou Ann, was surfing the web one day in 2014 when […]
Power Player: Kati
A PowerPlayer is anyone who supports the life-saving cause of organ donation and transplantation, from the patients who receive transplants to the donors and their families who make those transplants possible, to the medical professionals who arrange and perform the life-saving miracle of transplantation. Kati was presented with an opportunity to save someone in her […]
How Will the AHCA Law Impact Transplant Patients?
The American Society of Transplantation (AST) recently issued a statement regarding the newly passed American Health Care Act (AHCA). The AST has several concerns about the law, as it is likely that it will result in many transplant patients losing insurance coverage. For more information, read the full release.
Power Players: The Vargas Family
Sarah Vargas, and her husband, Tony, are true Power Players in our eyes. Their daughter, Rosalina, was born with Maple Syrup Urine Disease (MSUD), which was discovered when she was four days old through newborn screening. At just 11 days old, the couple came close to losing their daughter. After that, they vowed to do […]
Power Player: Frank Greaney
Frank Greaney is happy to be alive, and he credits his survival to his organ transplant. In 1997, Frank Greaney was diagnosed with an autoimmune liver disease, Primary Sclerosing Cholangitis (PSC). PSC is a progressive liver disease for which there is no cure. He was soon listed for a liver transplant in the New England […]
Power Player: Steven Turner
Seven years ago, Steven Turner made a “Good Samaritan” decision – he became a living donor to a stranger. His story is truly heartwarming, as his selfless act kept another family whole. At the time, there was local news coverage about a young family that was facing the nightmare of kidney failure. The couple had […]