Caleigh was diagnosed at birth with Cystic Fibrosis. Despite her diagnosis, Caleigh lived a normal childhood and participated in sports and social activities. At the age of 19, Caleigh moved to San Francisco to attend culinary school. Unfortunately, during this time, she found herself in end-stage lung disease. At just 23 years old, she was […]
Power Player – Suzy
Suzy’s journey to transplant began nearly 30 years ago when she was diagnosed with polycystic kidney disease. She got tested after her father, who passed away waiting for a kidney transplant, was diagnosed with polycystic kidney disease. She was fine for a while, but by 2008, she was told that she needed to go on […]
Power Player – Tiffany
Tiffany is the caregiver to her 15-year-old son, Devin, who received a heart transplant in December 2017. Their journey began when Devin was an infant – he went through five open-heart surgeries by the time he was eight years old. Devin was born with hypoplastic right heart syndrome. He also developed a condition called plastic […]
Transplant Community Summit – Call for Topics
Power Player – Rhonda
Two years ago, Rhonda’s father went into kidney failure because of his diabetes. At the time, he was 74 years old and just starting home dialysis. After a year of dialysis, Rhonda told her father that he should attempt to get a kidney transplant. She offered to be his living donor, but he declined her […]
Power Player – Vernell
In 2015, Vernell received news that he needed a heart transplant. His doctor told him to pack his bags – he required hospitalization while he waited for a new heart. He suffered from congestive heart failure and spent six months in the hospital waiting for an organ donor. The wait was difficult for Vernell and […]
Power Player – Matt
Matt has been dealing with kidney disease for his entire life, all 42 years of it. It has not knocked him down but made him stronger. Matt was born with Eagle-Barrett’s Syndrome. When he was born, he had about 10% function of his kidneys. The first ten years of his life, he considered it “normal.” […]
Power Player – Vicky
Vicky’s journey began 40 years ago when she was diagnosed with chronic kidney disease at 26 years old. At 26, she was told her kidneys were functioning at 75%. In her 40s, she started seeing a nephrologist, who monitored her kidney disease. She was told she would need a kidney transplant. Although transplantation was not […]
Power Player – Alin
On December 21, 2018, 30-year-old Alin’s life changed forever. After having episodes of dyspnea for several days, she decided to go to the emergency room. She became critically ill during her first night in the hospital, and by the third day, she was told that she would likely need advanced heart failure therapy since her […]
Nadler, Herrera Beutler, Gillibrand, Cotton Introduce Bipartisan Living Donor Protection Act to Protect Organ Donors
WASHINGTON, D.C. –Today, Congressman Jerrold Nadler (D-NY) and Congresswoman Jaime Herrera Beutler (R-WA), joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act of 2019 to protect the rights of living organ donors. Organ donation saves thousands of lives every year, but roadblocks remain that too often stop […]
