Written by Shirleyanne J Psalm 140:1-2 “Praise the Lord! Praise the Lord, O my soul. I will praise the Lord all of my life. I will sing praise to my God as long as I live.” My God Support Journey began on June 20, 2016, when I survived a massive heart attack. At 3:00 am, […]
Power Player – Lisa
Written by: Lisa E. The universe may place hurdles in your path that seem insurmountable, but the resilience of the human spirit will also give you the strength and stamina to overcome them. In 2017, I was thrust into a race I had never wanted to run where reaching the finish line meant life or […]
Power Player – Ashley
In September 2012, Ashley and her husband were preparing for the upcoming birth of their daughter, when Ashley went into labor at only 22 weeks of her pregnancy. Shortly after delivery of their daughter, unfortunately, passed away. Not long after the delivery, Ashley began to bleed heavily, and during a DNC her lungs began to […]
Power Player – Kingston
In April of 2019, Lisa Macfarland welcomed her 2nd son, Kingston, into the world, who appeared to be a happy, healthy baby. Yet, 2 weeks after Lisa gave birth, Kingston was no heavier than his original birth weight. Doctors insisted to Lisa that she was simply not feeding her son enough, and suggested supplementing with […]
Immuno Bill Introduced
In December 2019, Representatives Ron Kind (D-WI) and Michael Burgess, M.D. (R-TX) along with Anna Eshoo (D-CA), Jason Smith (R-MO), Donald McEachin (D-VA), and Jaime Herrera Beutler (R-WA) introduced H.R. 5534, the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019. The American Society of Transplantation (AST), representing a majority of the nation’s […]
Power Player – Annemarie
Annemarie’s story began with a morning walk alongside her mother, sister, and three family dogs before the start of the school day. It was the first and only time that Annemarie and her sister asked if they could join their mother to walk the dogs. During their walk and in a hurry to get back […]
Power Player – Cal
In February 2007, Cal began coughing almost nonstop during the day. He also started to feel winded while performing everyday activities and additionally noticed that, while playing basketball with co-workers, the other players began to outpace him, which typically wasn’t the norm. He even noticed that simply climbing the stairs to his third-floor condo now […]
Power Players – Mike and Joy
Last October, Joy decided she wanted to be a living kidney donor. She didn’t have a recipient in mind, but she filled out a questionnaire and was told she could proceed with medical testing. “I just woke up one day and decided I wanted to be a donor,” Joy said. A couple of […]
Transplant Advocacy Award
The Transplant Advocacy award recognizes an individual’s contribution and advocacy to one or more of the following areas: Transplant Recipient Quality of Life Organ Donation Transplant Education Recipient and Donor Rights Transplant Research Funding Eligibility Criteria: Nominee must be a transplant recipient, candidate, live donor, donor family and/or community advocate who has championed a transplant […]
Power Player – Robert
Written by Robert C. Five years ago, Robert Collier lay in a hospital bed after years of trying to fight off a disease that was “scarring my lungs to where they were hard as a rock.” Collier was placed on a lung transplant list, but it could take months before he may receive new lungs. […]
Power Players – Amanda and Nicole
If you could save a stranger’s life, would you? If so, check out LiveDonorToolkit.com to learn about living donation. Here’s Amanda and Nicole’s story. Amanda and Nicole met in 2015 in a Facebook group about parrots and connected over their mutual love of helping them. Both Amanda and Nicole have old wild-caught Amazon parrots and […]
Power Player – Jeff
Written by Jeff P. In 1992, I found out that I was only born with one kidney. In 2000, I started having issues with the kidney and was seeing a nephrologist. As time went on, the kidney developed cysts which were causing some issues with elevated B/P and protein output. January of 2017 arrived with […]
Power Player – Shawn
Shawn recently celebrated his first kidney transplant anniversary, thanks to his friend and living donor, John. Over 15 years ago, Shawn met John at a church retreat in Miami. The two became fast friends, and Shawn shared that he had Polycystic Kidney Disease (PKD). When Shawn explained how PKD leads to kidney failure, John immediately […]
College Scholarship: Promoting Organ Transplantation – Creative Content
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Power Player – Roy
Roy is a store manager at a regional furniture retailer called Raymour & Flanigan. In 2019, Roy’s store gained a new associate, Randy. Randy had requested a transfer to a store that would make his commute easier, as he is the caregiver to his 21-year-old son with brain cancer. Two weeks after Randy started, he […]
Power Player – Paul
Paul’s journey began on March 17, 2012, when he unknowingly had an 8-hour heart attack that he assumed was mental. When he went to the hospital, they confirmed he had a heart attack. Immediately after, Paul quit smoking and changed his lifestyle. His heart muscle was scarred very badly but Paul and his medical team […]
Power Player – Kathie
Kathie Boyette is no stranger to health ailments. Having Type I Diabetes throughout her life meant always having to rely on medication to adjust her blood sugar levels. But, after years of taking insulin, her pancreas was beginning to fail and a transplant seemed imminent. At first, Kathie thought a transplant was a drastic move, […]
Power Player – Moises
Moises’ transplant journey began when his doctor diagnosed him with kidney disease during an evaluation for Gastric Bypass surgery. The progression of Moises’ kidney disease started slowly but increased over the next five years. He knew that he would soon need dialysis but always thought a transplant would come first. Moises is a hairdresser and owns […]
Power Player – Michael L.
In April 2018, Detective Lollo saw an NYPD Intranet posting about another police officer that needed a kidney. Michael inquired about donating but did not receive a response. Michael didn’t think about living donation again until September 2018, when he saw an article about Marc Weiner, a man who had a Times Square billboard donated […]
Power Player – Tyler
Several years ago, Tyler overheard a conversation about living kidney donation. This topic always stuck with him, although it would take several years for the idea to come to fruition. Tyler was in a work accident in 2009, which left Tyler with an amputated foot. “I learned to live with missing parts, so I knew […]
National Drug Shortage of Generic Tacrolimus
There is a national drug shortage of generic tacrolimus that may or may not affect your ability to get your medications in the next few weeks. Please contact your pharmacy to find out how much supply they have and contact your transplant doctor to discuss options during the drug shortage. The supply of several brand-name […]
Power Player – Terri
Terri was born with Tyrosinemia, a rare metabolic disease, where the body doesn’t have what it needs to break down tyrosine. She was in and out of the hospital frequently as a child; something as simple as a cold would put her in the hospital. Terri’s care began in Georgia, but Terri and her family […]
Power Player – Tammy
It was the early 2000s, Tammy was in her 40s, and she was becoming increasingly ill. This went on for about a year. Meanwhile, Tammy was missing work and losing a significant amount of weight. Her doctor advised her to see an allergist. When she went to see the allergist, she was told that she […]
Power Player – Rylee
Our daughter Rylee was a gift from the beginning. Even before she was born, we knew she was strong, mainly because she was able to kick and punch me more than either of her brothers. When Rylee was first born, she was perfect. Her brothers, Cody (6) and Wade (4) were so excited to meet […]
Power Player – Patricia
Written by: Patricia Metrick My name is Patricia Metrick and I first heard of kidney disease when I moved to Arizona in the late 1980s. I read an article from Irma Bombeck who had the disease and was writing about kidney donations. I was intrigued and considered the possibility of pursuing donating, but time flew […]
Power Player – Damian
Damian had never thought about living organ donation before. That was until one of his best friends needed a liver transplant. A few friends from high school volunteered to be her donor but ultimately fell through. A family member of his friend asked Damian to post on social media about her need for a liver […]
Power Player – Ken
Ken was diagnosed with Polycystic Kidney Disease at the age of 24. This diagnosis would eventually lead him to a kidney transplant. Ken remembers his diagnosis clear as day. It started as a typical day, but after dinner, Ken felt pains in his stomach area and dead pains in his back. These pains had been […]
Power Player – Liz
Liz was diagnosed with cystic fibrosis at just four months old. By her sophomore year of college, her health began to decline, and she had to move back home with her parents. She knew that a lung transplant was in her future. By February 2018, her illness became much more severe. Her doctors decided that […]
Power Player – Louise
Dialysis has always been terrifying for Louise. When she was just ten years old, she experienced a dialysis center for the first time with her mother, who was diagnosed with Polycystic Kidney Disease (PKD). Just eight years later, Louise was diagnosed with PKD. Although the news was devastating, it was not a surprise. PKD is […]
Power Player – Lara
Written by Lara G Have faith in God. All that’s required is that you really believe and do not doubt in your heart. You can pray for anything, and if you believe, you will have it. Mark 11:22-24. I’ve lived by this since March 2017 and have often referred to it as my lifeline because […]
Power Player – Randene
Written by Randene R. Meet Gary, 72 years young with a now fully functioning kidney he received from his daughter, Randene, at the age of 33. At the early age of 18 during a routine physical, Gary’s family doctor discovered excessive albumin in his urine. Concerned with kidney failure, over the next 7 or 8 […]
Power Player – Caleigh
Caleigh was diagnosed at birth with Cystic Fibrosis. Despite her diagnosis, Caleigh lived a normal childhood and participated in sports and social activities. At the age of 19, Caleigh moved to San Francisco to attend culinary school. Unfortunately, during this time, she found herself in end-stage lung disease. At just 23 years old, she was […]
Power Player – Suzy
Suzy’s journey to transplant began nearly 30 years ago when she was diagnosed with polycystic kidney disease. She got tested after her father, who passed away waiting for a kidney transplant, was diagnosed with polycystic kidney disease. She was fine for a while, but by 2008, she was told that she needed to go on […]
Power Player – Tiffany
Tiffany is the caregiver to her 15-year-old son, Devin, who received a heart transplant in December 2017. Their journey began when Devin was an infant – he went through five open-heart surgeries by the time he was eight years old. Devin was born with hypoplastic right heart syndrome. He also developed a condition called plastic […]
Transplant Community Summit – Call for Topics
Power Player – Rhonda
Two years ago, Rhonda’s father went into kidney failure because of his diabetes. At the time, he was 74 years old and just starting home dialysis. After a year of dialysis, Rhonda told her father that he should attempt to get a kidney transplant. She offered to be his living donor, but he declined her […]
Power Player – Vernell
In 2015, Vernell received news that he needed a heart transplant. His doctor told him to pack his bags – he required hospitalization while he waited for a new heart. He suffered from congestive heart failure and spent six months in the hospital waiting for an organ donor. The wait was difficult for Vernell and […]
Power Player – Matt
Matt has been dealing with kidney disease for his entire life, all 42 years of it. It has not knocked him down but made him stronger. Matt was born with Eagle-Barrett’s Syndrome. When he was born, he had about 10% function of his kidneys. The first ten years of his life, he considered it “normal.” […]
Power Player – Vicky
Vicky’s journey began 40 years ago when she was diagnosed with chronic kidney disease at 26 years old. At 26, she was told her kidneys were functioning at 75%. In her 40s, she started seeing a nephrologist, who monitored her kidney disease. She was told she would need a kidney transplant. Although transplantation was not […]
Power Player – Alin
On December 21, 2018, 30-year-old Alin’s life changed forever. After having episodes of dyspnea for several days, she decided to go to the emergency room. She became critically ill during her first night in the hospital, and by the third day, she was told that she would likely need advanced heart failure therapy since her […]
Nadler, Herrera Beutler, Gillibrand, Cotton Introduce Bipartisan Living Donor Protection Act to Protect Organ Donors
WASHINGTON, D.C. –Today, Congressman Jerrold Nadler (D-NY) and Congresswoman Jaime Herrera Beutler (R-WA), joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act of 2019 to protect the rights of living organ donors. Organ donation saves thousands of lives every year, but roadblocks remain that too often stop […]
Power Player – Kevin
After some health issues, Kevin found out he needed a heart transplant. In July 2017, he was added to the transplant waiting list. Kevin said waiting was the hardest part of his journey. “I prayed every day while I was on the waiting list,” Kevin said. “My condition got worse during the wait, so I […]
Power Player – Tara
On December 12, 2017, Tara found out that her dad, Todd, was in end-stage renal failure and would need a kidney transplant. Tara immediately knew that she wanted to become his living donor. Todd hesitated to allow Tara to donate her kidney. However, she finally convinced him that it was safe for her to donate […]
Power Player – Reid
Written by Reid Barker Power2Save previously published a story written by Reid’s wife, Lisa. In February of 2014, in the hallway of the Baylor Dallas hospital ICU, I was told my wife would need a full liver transplant from a deceased donor to have any chance at survival. Her body was in liver failure which […]
Power Player – Hailey
Hailey was born with a heart defect and required surgery as a baby. She didn’t remember the surgery and never expected to hear the words “you need a heart transplant” when she was just 16 years old. “I never knew I would need a transplant, so it was a big shock when I found out,” […]
Power Player – Summer
Seven days after giving birth to her son, Kaleb, Summer passed out and was admitted to the emergency room. She was diagnosed with post-partum cardiomyopathy and was told she would eventually need a heart transplant. She was just 19 years old. The news was very terrifying, especially for a brand-new mom. A year and a […]
Power Player – Ixel
Ixel was just eight years old when she found out she needed a heart transplant. Her story began when her mom brought her to Urgent Care, for what she thought was a cold. She was sent to the hospital by ambulance. At the hospital, it was clear there was something wrong with her heart, so […]
Power Player – Sarah J.
For Sarah and Jim Jones, a journey that would lead to a liver transplant and the start of a non-profit to help others began in 2002 when Jim was diagnosed with kidney cancer. Soon after Jim was diagnosed with kidney cancer, he had his kidney removed. However, just a few weeks after the surgery, he […]
2018 Congressional Mid-Term Election Results & Review
The first mid-term elections for President Trump have come and gone, and the outcomes went largely as most observers thought they might: Republicans maintain control of the Senate and House Democrats now control the majority. Senate Democrats faced an uphill battle having to defend ten seats in states that President Trump won and 26 total […]
OPTN/UNOS Patient Affairs Committee Looking to Fill Openings
The Organ Procurement and Transplantation Network (OPTN)/United Network of Organ Sharing (UNOS) Patient Affairs Committee is looking to fill some openings for its next appointment cycle, starting in July 2019. The Patient Affairs Committee meets monthly via web conference and twice a year in-person. The Committee advises the OPTN/UNOS Board of Directors and other committees about patient […]
Power Player – Julie H.
Julie was a 26-year-old mother enjoying life with her family when she discovered she needed a lung transplant. Julie was a healthy and active mom when she began to experience occasional shortness of breath. Other than that, life seemed pretty normal until the day she collapsed. That day, she had friends over. She went upstairs […]
2018 Research Grants
AST Faculty and Fellowship Grants $570,000 in grants were awarded in 2018. Ibrahim Batal, MD Columbia University Research Title: The Clinicopathologic Significance of Graft Dendritic Cells and Ischemia-reperfusion Injury in Kidney Allograft Inflammation and Outcome Matthew Kadatz, MD, FRCPC University of British Columbia Research Title: Removing cost as a barrier to performance of high-risk kidney transplants: […]
Power Player – Julie
Julie knows the importance of making “One Transplant for Life” a reality – she is the recipient of three kidney transplants. Julie has battled kidney disease her entire life. Her parents found out when she was just six weeks old, and she lived with only 25% kidney function until she was 11 years old. Thankfully, […]
Power Player – Patrick
In April 2013, during a visit with my endocrinologist, I found out that I only had 35% kidney function. She referred me to a nephrologist. My nephrologist informed me of certain foods I needed to avoid so that I could prolong going on dialysis as long as possible. While I had to wait this thing […]
Power Player – Sarah
My name is Sarah Bradley, and I am from a small town called Roswell, NM. I’m a proud momma of two boys. I am also a heart transplant recipient. A lot of times, when you hear the words heart failure, you think of the elderly. As a healthy 25-year-old, never did I expect to hear […]
Power Player – Michele
Michele always assumed that the only way to be an organ donor was to designate it on your driver’s license. However, after a string of unexpected events, she became a living donor to a woman she had never met. Michele lives in Florida, but her kidney now lives in California. The origin of her story […]
Power Player – Christy
In 2005, Christy was diagnosed with heart failure. By 2014, she was told she would eventually need a heart transplant. The news that a heart transplant would be in her future was not easy to hear, but with a history a heart problems, Christy was not terribly surprised. She tried to stay positive when she […]
Power Player – Ray
Ray’s doctor often refers to him as a “walking miracle.” He beat all odds, and if he were a textbook case, he would not be around today to tell his story. It all started in December 2016, when Ray began retaining fluid in his abdomen. It became difficult to sleep, so Ray consulted his primary […]
Power Player – Megan
Megan was a 24-year-old teacher when she was diagnosed with focal segmental glomerulosclerosis. She was told she would need a kidney transplant. When she found out she needed a kidney transplant, she was terrified. The internet was still new at the time, but she did as much research as she could. Her transplant center connected […]
Power Player – Valerie
I went to my GP back in 2000 because I had been suffering from diarrhea for a rather a long time. I was referred to a consultant, Dr. Ellis at the Horton Hospital, Banbury. When he looked at my blood test results, he found that I had the anti-mitochondrial antibody which can sometimes lead to […]
Two New Jersey Nonprofits Partner to Promote a Second Chance at Life
The American Society of Transplantation (AST), a New Jersey-based non-profit dedicated to advancing the field of organ transplantation has partnered with the Animal Welfare Association (AWA), the oldest and largest no-kill animal shelter in South Jersey, for a unique opportunity to promote two critical causes: organ donation and animal adoption. On August 20, the AST […]
Power Player – Brock
In April 2017, when Brock was just turning 11 years old, he was diagnosed with stage 4 hepatoblastoma, a tumor that starts in the liver. By July 2017, he needed a liver transplant and was added to the waiting list. All of this came as a shock to Brock and his family. Brock appeared to be completely […]
OPTN/UNOS Nominating Committee Seeking Nominations
The OPTN/UNOS Nominating Committee is seeking nominations for the 2019-2020 Board of Directors. Voting members of the Board of Directors are elected by a vote of the entire membership and serve as volunteers without compensation. Individuals may self-nominate or nominate others by submitting a biography form. The Nominating Committee will be taking nominations for the […]
Power Player – Dave
Written by: Dave R. My transplant journey began at birth – I just didn’t know it until I was in my 50s. I was born in 1956 with a hole in my heart, and of course, it was undiagnosed because the technology was just not available in the fabulous 50s. The amazing thing is I […]
Power Player – Steve
In 1992, Steve was diagnosed with Primary Sclerosing Cholangitis, a form of liver disease. Fortunately, the disease progressed slowly and Steve’s doctors were able to keep it under control for many years. Nearly ten years later, it had been so long since Steve was first diagnosed that he had forgotten the potential outcome – a […]
Power Player – Kyle
When Kyle was just 20 months old, he was diagnosed with Hypertrophic Cardiomyopathy. Luckily, the impact on his childhood was low. It was not until April 2010 when he collapsed at 5:15 AM one morning. More severe issues came in 2013 when Kyle’s congestive heart failure started. In 2015, he was doing an exercise test. […]
Power Player – Alana
Alana was just 13 years old when she was diagnosed with kidney disease. It took ten years for her to require a kidney transplant, and thankfully, her brother volunteered to be her living donor. The living donation allowed Alana to bypass dialysis, so she was very excited (as well as a little nervous) when she […]
Power Player – Charles
My sister Nancy is seventy. When she was twelve her kidneys began to fail, triggered possibly by an autoimmune response to being stung by a swarm of bees. For the next six years, I watched as medications, needles, blood tests, doctors, hospitals, and finally kidney failure consumed her life. This was the sixties and artificial […]
Power Player – Anne Marie
I was born in Ottawa, Canada with a congenital heart defect. I had 3 heart surgeries as a child, the first one being the day after I was born. Doctors had warned my parents that these surgeries were palliative: problems would eventually start to arise because my heart would start to fail. Although I couldn’t […]
Power Player – Sandra
Sandra was on a family vacation in Mexico, when something happened that would change her life. While playing with her kids in a waterfall, she slipped and scraped her ankles. She had an open wound and entered tainted water. Months later, she began to feel tired. Her drowsiness turned to exhaustion, and Sandra soon went […]
Power Player – Denise
Denise recently celebrated the 20-year anniversary of her transplanted liver. Her donor was 75-year-old, Geraldine Hodges. Her liver is now over 95 years old – and still going strong. Denise found out she would likely need a liver transplant when she was around 18 years old. She was diagnosed with autoimmune liver disease, which ultimately […]
Power Player – Lauren
I am a 28-year-old female who has lived with Cystic Fibrosis her whole life. If you don’t know, Cystic Fibrosis causes thick mucus build-ups in lungs, which become nearly impossible for medicine to cure, thus resulting in a lung transplant. For the last six years, my doctor has causally mentioned lung transplant at various appointments. […]
Power Player – Robert
In 2012, I was working for a landscaping company. I got a couple of hernias and went to a surgeon to have them fixed during our offseason. I had to do regular blood work for the surgery. That is when my doctor called me in and said, sit down. The next few minutes turned my […]
Power Player – Carol
To say that I was an unlikely kidney donor is an understatement. If my high school yearbook had had a “Least Likely to Be a Living Kidney Donor” category, that would have been me. I’ve always been a wimp: I faint at flu shots, IVs, blood tests. And yet, in June 2006, I donated a […]
Power Player – Jill
Written by: Jill Stephenson My greatest gain I count as a loss. As the sister AND mother of organ donors, I can make this statement twice. When I was barely fifteen years old, my eleven-year-old brother J.T. was hit by a car and declared brain dead ten days later. As a family, we were approached […]
Power Player – Ken
Ken was just ten years old when he was diagnosed with kidney disease. His doctors tried to treat the condition for years, but by the time Ken was in college, it was clear he would need a kidney transplant. During his second year of medical school, Ken’s father volunteered to be a live donor and […]
Power Player – Rick
Rick and his wife, Jackie, have always been there for each other. They have been married 36 years and have always taken care of one another. In 2015, Rick gave his wife a Valentine’s Day Gift that will be difficult to top – he became her living kidney donor and saved her life. It all […]
Transplantation: The Science Fiction That Became Mainstream Medicine
Written by: Reg Green To most people — to almost all people — the idea of having someone else’s heart or liver, kidney, lungs or pancreas inside them is too outlandish to think about. But, in fact, all around us there are ordinary men, women, and children who one day have been, or will be, told […]
Power Player – Tatiana Benitez
When I was 5 years old, I was diagnosed with cardiomyopathy, and my only hope of survival was a heart transplant. My case was the first pediatric heart transplant in Paraguay. The surgery was performed by Dr. Jorge Jarolin at the Bautista Medical Center. Today, I celebrate 10 years with my heart transplant. I live […]
American Society of Transplantation Earns GuideStar Platinum Seal
The American Society of Transplantation (AST) announced that is has earned the 2018 Platinum GuideStar Nonprofit Profile Seal of Transparency, the highest level of recognition offered by GuideStar, the world’s largest source of nonprofit information. GuideStar’s Platinum Seal of Transparency recognizes AST’s sharing of detailed quantitative measures of progress and transparency. Less than 5,000 of […]
April is National Donate Life Month
April is Donate Life Month. This month-long celebration of life was first established by Donate Life America in 2003. Below is some essential information to help you celebrate. National Pediatric Transplant Week Brand new this year is the National Pediatric Transplant Week. Celebrated April 23-27, 2018, National Pediatric Transplant Week was created in collaboration with […]
Power Player – Holly
I was the youngest by three minutes. So, I suppose being a twin help me to fight, to give me the will to live from day one. The doctors knew something was wrong. I don’t think we ever did get a satisfying answer as to why I was sick. I ended up being the youngest […]
Power Player – Brooke
March 28th, 2018, marks our one-year Kidneyversary. Last year I was a 38-year-old wife and mother of 2 boys who were 7 and 9, and I decided to be a kidney donor for my brother-in-law. This would be his second kidney transplant. My brother in law, Rob, was diagnosed almost 15 years ago with FSGS. This […]
Power Player – Cynthia
Cynthia Infante is a two-time kidney transplant recipient. She was born in 1972 in Arizona and has lived there ever since. She was first diagnosed with kidney disease at the age of 15 and at the age of 19 she was placed on hemodialysis. While on dialysis, she remembers sitting for three to four hours […]
Law & Order Episode on Organ Donation
On March 14, 2018, an episode of Law & Order SVU aired which featured a story about a child’s organs being recovered without the consent of her parents. While this episode was not based on a true story, the message it portrays is damaging to the public’s trust around organ transplantation and donation. In the […]
Power Player – Anna
I never had any problems growing up and was “normal” for all I knew. I was 21 years old and in my 2nd week of nursing school when I became short of breath for over 3 days. Finally, I went to the ER because of it. That day, I went from being “normal” to finding […]
Power Player – Brigette
Written by: Brigette McKern At the age of four, I was diagnosed with Cystic Fibrosis – a disease that affected my lungs and digestive systems. Even with receiving quality care, my parents were told I would most likely not survive past school age. My parents kept me compliant with treatments, medications, and appointments, and as a […]
Power Player – Matt
My name is Matt Kishbaugh. I will be 35 on January 28, 2018. I live in Pennsylvania. My family and I know what it’s like to deal with kidney disease. I was 13 when I was diagnosed with polycystic kidney disease. Polycystic kidney disease is where a cluster of cysts form inside your kidney. The […]
Power Player – Rachel
Written by: Rachel Adams I donated altruistically to a woman in Pennsylvania. I think I’ll always remember the moment they told me her creatinine levels had gone down to normal. The sun was shining outside my hospital window and my mom and best friend were in the room. I didn’t know how many transplants were […]
February 14th is National Donor Day – Are You An Organ Donor?
For some, February 14th is filled with flowers, balloons, and chocolate hearts. But for those who advocate for organ donation, February 14th is a much bigger day – it’s National Donor Day. National Donor Day was established by the U.S. Department of Health and Human Services, the Saturn Corporation and its United Auto Workers in 1998. […]
Power Player – Paul
Paul is avid about working out and staying healthy. He never misses an opportunity to go to the gym and improve himself. He is also the recipient of two double lung transplants. When Paul was born, he was diagnosed with Cystic Fibrosis. Despite his illness, he played sports and remained active growing up. He believes […]
Power Player – Jennifer
When Jennifer was 14, she was diagnosed with polycystic kidney disease (PKD). Her journey eventually led her to dialysis and to the transplant waiting list. On September 9, 2016, she received a phone call around midnight. Her doctor asked her about dialysis and when she had last eaten. Then, she found out that a kidney […]
Power Player – Jordan
Jordan received a heart transplant as a child. He has been living life to the fullest – with a goal to be the first transplant recipient to visit every country in the world. Written by: Jordan D Marcia Follow him on Instagram and Facebook I was born with a rare, congenital heart defect known as transposition […]
Power Player – Tony
Written by: Tony Alfredo Leon Luna I am from Venezuela. I was diagnosed with myocardiopathy when I was 5 years old. I had my first pacemaker in 2005 and received another one 2011. After the second pacemaker, my heart was growing more and needed more stimulation. Since that the generator ran out faster, I received […]
Power Player – April
After a minor surgery in 2010, April discovered that she had chronic kidney disease. She then found out that she would need a kidney transplant. Unlike many patients with kidney disease, April never went on dialysis. She admits that she was too stubborn to start. Instead, she attempted to line up a living donor, although […]
Power Player – Edith
Edith was living a happy, healthy life when she suddenly became ill and was rushed to the emergency room. She discovered that that one of her lungs had collapsed and she was diagnosed with a lung condition called Lymphangioleiomyomatosis (LAM). She had been living with this condition for several years but was completely unaware. Unfortunately, […]
Power Player – Brandi
In 2014, I was living in Austin, Texas. I loved to exercise and lift weights. I enjoyed watching and playing sports. One day I notice my throat was sore so I went to the doctor. I was diagnosed with strep throat and prescribed antibiotics. After I finished my antibiotics, I noticed it was difficult to […]
Power Player – Miguel
Miguel was living a full life before his heart transplant. He had graduated dental school, started his own practice, and gotten married. In 2012, he began to feel sick. His face started to feel numb, so he went to see his doctor for tests. However, nothing was found in these tests, and he went back […]
Power Player – Stephen
Stephen was born with a very rare kidney disease called Autosomal Recessive Polycystic Kidney Disease (ARPKD) that affects both the kidneys and liver. The disease was discovered during his mother’s 27th week of pregnancy during a routine ultrasound. Doctors gave Stephen a less than 1% chance of living more than a few hours after he […]
Our Medicare policy for kidney transplants is totally irrational
This article was originally published on the Washington Post. By Marcello Tonelli and John Gill Marcello Tonelli is associate vice president of research at the University of Calgary. John Gill is a clinician scientist and professor of medicine at the University of British Columbia and a member of the board of directors for the American Society of Transplantation. They are both […]
